My life as an entrepreneur, grandmother, writer, dreamer and doer who lives with multiple sclerosis, epilepsy and depression.
Monday, May 11, 2015
Well Fuck, I Have Multiple Sclerosis
And that's really all I have to say about it right now.
Happy 2016!
--
MS aside for a moment. I've spent my life as an entrepreneur, adventurer, pioneer, scientist, nurturer and general mischief maker.
--
Somebody asked me quite snarkily over 20 years ago what it was going to be like in 20 years when I'm an old grandma with tattoos and piercings. I have an answer now. It rules.
--
I probably spent yesterday laughing with my grandkids.
--
I love a diverse range of music and it's always cool to find new sounds or get suggestions. If it reminds you of 70s Brian Eno, it's probably something I would enjoy. Industrial Bollywood hip hop? Likely. Indie rock with lots of strings. Yes.
--
I'm always looking for some cool funny sciency philosophical book to read. ---//---
My Dx for MS was May 2015 but I've been having significant neurological issues for years. ----
MS - the Special Sitcom episode:
The last thing the nurse said to me after the lumbar puncture was "I hope you don't have MS". I immediately received a post-puncture Coca Cola with bendy straw AND an official MS diagnosis a few weeks later. Jinx. Pretty sure that nurse owes me another Coke.
Multiple Sclerosis- The Lumbar Puncture
"I hope you don't have MS. That would be TERRIBLE."
That's what the nurse said to me before handing me a Coca Cola. I was lying down completely flat in a hospital bed. Let me be honest with you, I cringed. I cringed at what the nurse said. I also cringed because no way in hell would I be able to lie completely flat AND drink a soda.
I wondered if Coke reps had to hard-sell soda to Neurology departments as a cure-all for lumbar puncture headaches.
The lumbar puncture (spinal tap) was a non-event. Thankfully. I've experienced more pain buttoning up jeans I should have stopped wearing five pounds ago.
A man two curtains away from me was yelling, "I can't lie still for an hour! It can't be done! I won't!" The nurse attempted to calm him. "Sir, we haven't done your procedure yet. You don't have to lie still."
The Coke and its bent straw stared at me from a shelf overhead.
I spent an hour reading news on my phone and then I went home.
I got my test results more than a week later. It was after I finished jury duty, or rather was immediately excused from jury duty after having revealed that I have seizures inside of a courtroom filled with people. Man, I've never seen doors open so fast. It was mortifying and magical.
That's what the nurse said to me before handing me a Coca Cola. I was lying down completely flat in a hospital bed. Let me be honest with you, I cringed. I cringed at what the nurse said. I also cringed because no way in hell would I be able to lie completely flat AND drink a soda.
I wondered if Coke reps had to hard-sell soda to Neurology departments as a cure-all for lumbar puncture headaches.
The lumbar puncture (spinal tap) was a non-event. Thankfully. I've experienced more pain buttoning up jeans I should have stopped wearing five pounds ago.
A man two curtains away from me was yelling, "I can't lie still for an hour! It can't be done! I won't!" The nurse attempted to calm him. "Sir, we haven't done your procedure yet. You don't have to lie still."
The Coke and its bent straw stared at me from a shelf overhead.
I spent an hour reading news on my phone and then I went home.
I got my test results more than a week later. It was after I finished jury duty, or rather was immediately excused from jury duty after having revealed that I have seizures inside of a courtroom filled with people. Man, I've never seen doors open so fast. It was mortifying and magical.
Happy 2016!
--
MS aside for a moment. I've spent my life as an entrepreneur, adventurer, pioneer, scientist, nurturer and general mischief maker.
--
Somebody asked me quite snarkily over 20 years ago what it was going to be like in 20 years when I'm an old grandma with tattoos and piercings. I have an answer now. It rules.
--
I probably spent yesterday laughing with my grandkids.
--
I love a diverse range of music and it's always cool to find new sounds or get suggestions. If it reminds you of 70s Brian Eno, it's probably something I would enjoy. Industrial Bollywood hip hop? Likely. Indie rock with lots of strings. Yes.
--
I'm always looking for some cool funny sciency philosophical book to read. ---//---
My Dx for MS was May 2015 but I've been having significant neurological issues for years. ----
MS - the Special Sitcom episode:
The last thing the nurse said to me after the lumbar puncture was "I hope you don't have MS". I immediately received a post-puncture Coca Cola with bendy straw AND an official MS diagnosis a few weeks later. Jinx. Pretty sure that nurse owes me another Coke.
Subscribe to:
Posts (Atom)