Hey Diary, it's me, RQ. I'm just checking in real quick. It's been 40 hours since I started my increased dosage of Keppra. It is 8:30 AM and I am making bread pudding and blasting music in my office. I have work to do today.
If not for a kind soul named Annie, I would be doing none of this today. It is more likely that I would be curled up on the floor somewhere in the house contorted and making weird crying sounds while snot drips down my face. That was typical. That was my new normal.
Today though, oh, hold up, the bread pudding is done, BRB...
Today I am fully functioning. I have paid projects to work on all day. I can do that because somebody cared, because somebody helped.
I do not want to start crying again about how happy I am to feel alive.
We need to care more about others. Caring changes lives. Caring saves lives.
Pay it forward today. Do something simple and kind for someone today because we are all in this together.
My life as an entrepreneur, grandmother, writer, dreamer and doer who lives with multiple sclerosis, epilepsy and depression.
Thursday, September 19, 2013
Dancing to Bread Pudding
Labels:
epilepsy,
keppra,
pay it forward,
random acts of kindness,
seizures
Happy 2016!
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MS aside for a moment. I've spent my life as an entrepreneur, adventurer, pioneer, scientist, nurturer and general mischief maker.
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Somebody asked me quite snarkily over 20 years ago what it was going to be like in 20 years when I'm an old grandma with tattoos and piercings. I have an answer now. It rules.
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I probably spent yesterday laughing with my grandkids.
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I love a diverse range of music and it's always cool to find new sounds or get suggestions. If it reminds you of 70s Brian Eno, it's probably something I would enjoy. Industrial Bollywood hip hop? Likely. Indie rock with lots of strings. Yes.
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I'm always looking for some cool funny sciency philosophical book to read. ---//---
My Dx for MS was May 2015 but I've been having significant neurological issues for years. ----
MS - the Special Sitcom episode:
The last thing the nurse said to me after the lumbar puncture was "I hope you don't have MS". I immediately received a post-puncture Coca Cola with bendy straw AND an official MS diagnosis a few weeks later. Jinx. Pretty sure that nurse owes me another Coke.
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