Sh*t. Oops. Started Solumedrol today after two days of thinking I could ignore my body. Increasing numbness on my right, wild mood swings, seizures, fatigue so intense it felt like I was dragging my tired ass, a baby and a lead doppleganger of myself...and WHAT? I can't hear for sh*t right now and my vision is blurry.
Obvious Life Protip: ask for help, take naps, and you can't win by ignoring symptoms. Take it from me kids, being a stubborn ass will just land you in trouble. written 7 months ago by RQ in her secret diary
My life as an entrepreneur, grandmother, writer, dreamer and doer who lives with multiple sclerosis, epilepsy and depression.
Monday, February 22, 2016
Multiple Sclerosis - The Solumedrol Days - Flair for Flare
Happy 2016!
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MS aside for a moment. I've spent my life as an entrepreneur, adventurer, pioneer, scientist, nurturer and general mischief maker.
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Somebody asked me quite snarkily over 20 years ago what it was going to be like in 20 years when I'm an old grandma with tattoos and piercings. I have an answer now. It rules.
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I probably spent yesterday laughing with my grandkids.
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I love a diverse range of music and it's always cool to find new sounds or get suggestions. If it reminds you of 70s Brian Eno, it's probably something I would enjoy. Industrial Bollywood hip hop? Likely. Indie rock with lots of strings. Yes.
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I'm always looking for some cool funny sciency philosophical book to read. ---//---
My Dx for MS was May 2015 but I've been having significant neurological issues for years. ----
MS - the Special Sitcom episode:
The last thing the nurse said to me after the lumbar puncture was "I hope you don't have MS". I immediately received a post-puncture Coca Cola with bendy straw AND an official MS diagnosis a few weeks later. Jinx. Pretty sure that nurse owes me another Coke.
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