My life as an entrepreneur, grandmother, writer, dreamer and doer who lives with multiple sclerosis, epilepsy and depression.
Saturday, February 13, 2016
Secret Depression Diary Archive - Irked
Irked. Specialty pharmacy calls me this morning. Not only was my Rx sent to a pharmacy an hour away but my Neuro requested 20 mg of Copaxone 3x weekly. (You and I both know that the 20 mg is daily and the 40 mg is 3x per week.)Specialty pharmacy nicely pleads for me to "follow up with your doctor because they never return our calls, maybe they are better with patient calls."They don't return my calls either. Ever. I did call. Shock. The assistant answered and assured me that everything will be a-ok. I repeated everything in simple language three times. 40 mg Copaxone three times weekly. Send to X pharmacy ONLY. Repeat. Repeat. Thank you so much. Thank you. Thank you. I honestly don't believe a word. Nothing I have requested from my Neuro has materialized. I have another round of MRIs in a month to check progress with this new med I have yet to take. I wait. We all wait. I try to focus on other things. Rather than cry today, rather than allow the fear to creep on in, I'm writing this post. The tears are swimming on the surface of my eyes but don't fully materialize into running tears. Breathe. And then I'm going to go smoke weed, meditate and listen to music for 20 minutes. posted 8 months ago.
Happy 2016!
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MS aside for a moment. I've spent my life as an entrepreneur, adventurer, pioneer, scientist, nurturer and general mischief maker.
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Somebody asked me quite snarkily over 20 years ago what it was going to be like in 20 years when I'm an old grandma with tattoos and piercings. I have an answer now. It rules.
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I probably spent yesterday laughing with my grandkids.
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I love a diverse range of music and it's always cool to find new sounds or get suggestions. If it reminds you of 70s Brian Eno, it's probably something I would enjoy. Industrial Bollywood hip hop? Likely. Indie rock with lots of strings. Yes.
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I'm always looking for some cool funny sciency philosophical book to read. ---//---
My Dx for MS was May 2015 but I've been having significant neurological issues for years. ----
MS - the Special Sitcom episode:
The last thing the nurse said to me after the lumbar puncture was "I hope you don't have MS". I immediately received a post-puncture Coca Cola with bendy straw AND an official MS diagnosis a few weeks later. Jinx. Pretty sure that nurse owes me another Coke.
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