My life as an entrepreneur, grandmother, writer, dreamer and doer who lives with multiple sclerosis, epilepsy and depression.
Thursday, February 18, 2016
Secret Depression Diary Archive - Thursday's Jam
--Thursday's Jam--Watching Williams and Sharapova on ESPN this morning. Today is my day off! On most days, for the past month, my 9 month old grandson has stayed with me while his mama is at work. While I am not capable of caring for a baby by myself, I can care for one with major assistance. I can do anything given I have someone else provide 100% full-time backup to do the job for me. Heh. It's good. It keeps me connected to my family. It's good even at times when I can do little more than lie down and watch my grandson play. It's been a week full of medical testing appointments and baby shuffling. I put off starting Copaxone for another day. Maybe tonight. No pressure. I was going to start on Tuesday but I was a sobbing exhausted mess covered in welting mosquito bites by the end of the day. I don't know why but mosquitoes and bugs in general love to bite me. written 7 months ago by RQ in her secret diary
Happy 2016!
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MS aside for a moment. I've spent my life as an entrepreneur, adventurer, pioneer, scientist, nurturer and general mischief maker.
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Somebody asked me quite snarkily over 20 years ago what it was going to be like in 20 years when I'm an old grandma with tattoos and piercings. I have an answer now. It rules.
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I probably spent yesterday laughing with my grandkids.
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I love a diverse range of music and it's always cool to find new sounds or get suggestions. If it reminds you of 70s Brian Eno, it's probably something I would enjoy. Industrial Bollywood hip hop? Likely. Indie rock with lots of strings. Yes.
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I'm always looking for some cool funny sciency philosophical book to read. ---//---
My Dx for MS was May 2015 but I've been having significant neurological issues for years. ----
MS - the Special Sitcom episode:
The last thing the nurse said to me after the lumbar puncture was "I hope you don't have MS". I immediately received a post-puncture Coca Cola with bendy straw AND an official MS diagnosis a few weeks later. Jinx. Pretty sure that nurse owes me another Coke.
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