First half of August was good but by mid-month I was beginning to really feel the medication wearing off by mid-day. I try taking a nap in the afternoon to "stretch" the medication but it doesn't really work. I start having seizures in my sleep.
Aug 27, Google Calendar note:
Need to ween down to 1,000 mg per day maximum medication (which was original starting) dose - if I want this medicine to last a full six months - until hopefully I can get insurance. PA will not prescribe increased dosage. Afraid of going back to neurologist for another $500. What if I'm just told "too bad?". Fuck. This is not how this medication is to be taken. I have zero follow-up/adjustments. I hate having multiple seizures a day.
Aug 28th, Google Calendar note:
Up all night. Extreme fear, temporal pain, typical nausea, urgency to pee, completely fucked.
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